Here are some great websites/organizations that educate about and support people with nystagmus:
This Wikipedia article is a great general overview. It also goes into much greater detail than I about the diseases that are often associated with/accompanied by nystagmus.
The Nystagmus Network
A national, self help organization based in the UK established in 1984 to:
Raise awareness of Nystagmus
Provide information and support to people with nystagmus
Promote research into nystagmus
The American Nystagmus Network
A nonprofit organization founded in 1999 to serve the needs and interests of those affected by nystagmus. It is an outgrowth of the Nystagmus E-Mail List introduced on the Internet two years earlier to provide information on a wide variety of topics pertaining to nystagmus.
This is a great website by a fellow shifty-eyed friend named James. He is a young man living with nystagmus in the UK. Like me, he shares some of his personal experiences with nystagmus. He also hosts a forum where shifty-eyed people and their loved ones can interact, ask questions, and just get some support. It’s also a great place to find more about research and recent studies.
This is a wonderful blog about parenting a child with nystagmus. It’s made in a similar fashion to this blog, but from a parent’s perspective.
This list will probably grow with time. If you have any great resources out there, let me know!