Update from Jo

Hi guys!

It’s been a while since I’ve had the chance to post. Big news…. I got married! Yay! ❤

As you can imagine, the past few months have been pretty insane. Not only was I planning a fairly large event, I also had to find an apartment, move, and attended wedding-related activities like showers and bachelorette parties. And work to pay for the whole shindig. Yikes.

So now that I’ve had a chance to settle in a little bit, I wanted to catch up with you guys. I’ve missed you! Thanks for all the love and support while I have been out and living my amazing life 🙂 Here’s some new things happening in my nystagmus world:

1) I can now post from my phone

This is excellent news because it means I can post even when my life is crazy and I’m never home (which is a lot right now). I can also post pics and videos a lot easier which is pretty cool.

2) I am going to the American Nystagmus Network’s conference in Washington DC

And you should too! It’s from July 22 -24.  They only hold them once every two years, so don’t miss your chance. When I first learned 2 years ago that there was a conference completely dedicated to Nystagmus, I had just missed it and was so disappointed. This will be my first, and I’m very excited. This may or may not seem strange, but I have never in my life come into direct contact with someone else who has nystagmus. I have heard that it can be an emotional experience. I can’t wait. And I’d love to meet my shifty-eyed friends out there, so you should all check it out and try to make it. I will be posting more on this event later, so stay tuned!

Love you all, missed you!




1 thought on “Update from Jo

  1. Jo,

    Lovely to see you back in action. Just checked in randomly and there you were.

    I went to my first ever Nystagmus Network Open Day in the UK last October and it was a revelation. First time I’d really met other people with Nystagmus and it was just amazing. Feel like I have to go to it for the rest of my life now.

    I’ve also had a spectacular year Nystagmus wise. I’m about to update the blog for the first time in an age but I’ve posted extensively on both the Nystagmus Network (the UK one) and James .co.uk site on the subject of Kestenbaum/tenotomy.

    Yup, I’ve had surgery!!!

    The posts will basically go up on my blog and I then plan to get back into the habit of writing and will further update the main Nystagmus article,

    Mike H

    PS: If you’re on Twitter or know anyone who is you can find me there tweeting my bus journey to work for a year from a sensory/disability/accessibility angle and the UK Nystagmus Network is building a presence there too. I tweet a bit about Nystagmus and Ocular Albinism too. I’m under the stunningly brilliant name of “@mikehighescq” 🙂

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